The Roots of Autoimmune Crisis (My updated story of Lupus and Lyme)

For those of you following my healing journey, here’s an update. For those of you here for the first time? Welcome to a conversation of HOPE.

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A little over a year ago, I asked if it was possible to heal autoimmune disease naturally? I believed then (and believe now) that it IS and that our mainstream institutionalized medical system is largely hampering our efforts. Not only that, but the constant ingestion of damaging pharmaceutical medications are often making us sicker, not better.

An award-winning rheumatologist once patted me on the bum and told me that my suffering was just a lack of sleep. I cried all the way home and paid him $600 out of pocket for his trouble. He was wrong, but that knowledge doesn’t repair the price paid in mind, body, and bank account.

I acknowledge that modern medicine is a great gift and saves countless lives every year. That is not at issue. My problem is with the lives it often needlessly exploits and damages when better resources are readily available but suppressed by a broken system.

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THE PROBLEM OF LUPUS

I have Lupus and mainstream medicine tells me that Lupus is an incurable autoimmune disease. The primary care specialist for most Lupus patients is a rheumatologist, and almost all rheumatologists treat Lupus symptoms with drugs that cause short and long term damage to the body in exchange for temporary relief and hope.

Those meds sometimes save a life when an organ is under concentrated attack by friendly fire. But like cancer meds, these life saving protocols do come with a price tag. I often wonder whether the cure is killing Lupus patients faster than their disease.

I’ve spent a lot of time listening to Lupus sufferers talk about their problems. There comes a point (rather quickly) at which the suffering of the disease becomes almost indistinguishable from the suffering caused by the  medication.

I didn’t want to go down that road and so I asked questions…

• WHY is my immune system attacking my own organs?

• How can I get it to stop without shutting down my immune system with meds?

What I learned from daily research is that the body is an awe-inspiring creation and that it does not fire on itself without a reason. I knew that if I could find that root cause, I could find some degree of healing. I will always have the dysfunctional antibodies with me but they don’t always have to be active and triggered. So…

What is triggering my antibodies to attack normal healthy cells?

That’s the million dollar question and I poured a boatload of money into integrative medical professionals and testing in order to find out. Money well spent, I believe.

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FUNCTIONAL MEDICINE

I was a model patient walking in the door because I had already laid the foundation for good health over the last 6-7 years which they recommend for every sick person they treat…

• I eat a diet free of garbage and inflammatory ingredients. (See how I eat HERE)

• I don’t take OTC or pharma meds without a truly grave reason.

• I live a healthy lifestyle free of alcohol, tobacco, and other toxic substances.

• I have a healthy weight and strive to stay active and minimize stress.

• I use gentle plant-based medicine and supplements to treat symptoms and support my body (More info HERE)

• I use personal and household products which do not poison my body

I was managing symptoms and disease (multiple autoimmune diseases) through a healthy lifestyle when so many others were becoming dependent on and trapped in a cycle of medication and misery. Some necessarily. Some because they were NEVER OFFERED AN OPTION.

In spite of all of this and in spite of tremendous healing and progress…

My autoimmune flare ups kept coming back, my neurologic issues continued to surface, neuropathy increased, and new problems were added to the mix. When my thyroid numbers went off track for the first time, I got angry…

I am collecting autoimmune diseases. If I don’t get a handle on this, I’m going to die young or become disabled. I’ve got 8 kids… I’m not going to give up the fight.

LEFT: Me, during a flare. Swelling, hair loss, malar rash, severe pain, numbness, extreme fatigue, nausea, migraines, respiratory problems, heart arrhythmias, sun intolerance, heightened allergic response, food intolerance, joint degeneration, etc.

RIGHT: Also me… walking the line between health and illness.
It’s a dimly lit photo so the light was favorable to my lines but… I usually look somewhere between these two photos. This illustrates the extremes to give a better understanding of the middle ground. My face often indicates (even in small ways) what the rest of my body feels like, although it’s generally invisible to others. Chronic illness always falls somewhere on a range of wellness. It’s generally not as simple as “I am sick today” or “I am not sick today.”

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So we started shelling out the money to get tested for root causes of systemic inflammation and antibody production. Those triggers generally fall into one of the following categories:

• Infections (bacterial, fungal, viral, SIBO)

• Heavy metal toxicity

• Leaky gut

• Parasites

• Toxic mold

• Chronic stress (which leads to leaky gut and chronic inflammation and dysfunction)

• Environmental toxins

• Nutritional deficiencies

• Pharma, OTC medications, and Vaccines (Don’t freak out, people. These are actually medically known triggers of Lupus. 10% of all cases, in fact, and I’m going to guess that’s a low number since it’s often impossible to identify a cause.)

(I’m going to mini-rant now about how insurance companies will cover brutally toxic meds that only mask symptoms but will NOT cover tests for most of the above. In my case, it was worth the money but it’s been a painful drain on my family’s resources. Financial concern has often kept me from pursuing care. We need a change in the system…. so that patient care is dictated by true patient needs and evidence-based choices, not pharmaceutical companies. Rant over.)

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YOU HAVE LYME DISEASE

One of the happiest days of this journey was when I finally learned that the underlying cause of my lifelong autoimmune cascade is Lyme Disease. It was also one of the most crushing days. I am happy to have identified an enemy. But Lyme Disease, with all of it’s complicated co-infections and dastardly elements… well… it’s not the enemy I would have chosen to fight. The initial news brought relief. The days that followed brought confusion and grief.

Regardless, I now have a target and I’m ready to fight.

My case is what is called “complicated” Lyme. The translation is that the professionals don’t really how to help me. In addition to Lyme, I have CIRS, and hypothyroid (new within the last year). I have a body full of disorder and they don’t know what they are fighting, where it is, and which medical options will help without making my situation worse.

For example, certain antibiotics MIGHT kill certain bacteria but WILL cause other bad actors to flourish. Other medications WILL cause a die off of certain bacteria but will also cause the body to become overloaded with toxins and also harm the immune system. Some antibiotics WILL kill SOME microbes but it will cause others to strengthen their defenses....

I don’t have the time or the money for this. Who does?

Protocols talk about alternating and “pulsing” meds to try to help patients without damaging them. They talk about all kinds of things that cause me to alternately hope and cry.

I am faced with a decision: which path will I choose to attack this enemy which has been setting up camp in my body since I was a child? Every single doc has a different approach (because it’s a bit of guessing game) and I’m left with one more question…

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IS THERE ANOTHER WAY?

I often run across research showing how certain natural substances destroy cystic Lyme, eat through biofilm, disrupt the inflammatory process, and do things generally better than antibiotics. I have experienced the direct and measurable impact of plant-based medicine and so it’s easy for me to believe from experience (and the science I’m reading) that these things are true. And I’m not going to complain (too much) about how the system is still handcuffed to what Big Pharma is doing and ignores everything else because…

I’m moving on.

My journey from this point is going to be research-based and pharma-be-darned. I will use them when it makes sense but otherwise, will be using an approach which honors the dignity and design of every single cell in my God-given body.

I’m not giving medical advice here. I’m just fighting for my own life and health. If you follow anything at all that I say, you have to do it based on your own belief that it is best for your body and not because I say so. Be your own advocate. Learn about your body and what it needs. Demand evidence-based care and full disclosure of medical procedures, medications, and all possible risks (informed consent).

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THE HEART OF THE MATTER

Lyme infections have been around for longer than recorded history and the human body is designed to handle them. It is not the bacteria itself which has suddenly gone rogue, but cultural practices (nutrition, toxic environments, unnecessary medications) that are systematically undermining our naturally efficient immune response. 

Our bodies are not broken by design, to be overrun by every common tick bite. Something has gone wrong. 

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WHERE I GO FROM HERE

My internet dialogue (website and social media) will primarily focus on what lifestyle choices I make in order to keep my body in fighting shape. I earnestly believe that for many of you, those changes will be enough to alter your life for the better in ways you never dreamed possible...

• Nutrition.

• Exercise.

• Managing stress levels.

• Sleep.

• Eliminating toxins/poisons in your products, food, environment.

• Informed self-care.

While I continue to navigate this road, I will continue to share natural wellness, nutrition, and essential oils with everyone I meet. I will also continue to write and share and work on larger products (TBA), and to immerse myself in my family life.

Life is short and I’m not going to lie; during a bad flare, I think about death a lot. What I bring here is a pouring forth of NO-REGRET health care.

“No-regret health care” means that I’m not going to compromise the gift of my bodily health in order to hoard time and grasp at pain-free living. Neither is possible. We are designed to pour out our lives in loving service with joy and holy boldness, keeping in mind always that we are not made for this world.

I have one shot with this body. I have one shot to teach my children about how we are to approach this gift. One chance to do my part to restore proper order to the way we live and care for the body as believers. Because it does matter and is the appropriate response to the gratitude we feel for life itself.

Welcome to my ongoing effort to honor the gift, utilize God’s plan for healing, and lay it down in service.

Thanks be to God!

A Catholic Perspective on Essential Oils (A Skeptic Confesses)

The first time I heard a friend talking about essential oils I confess that I pretty much tuned her out. She might as well have told me that she was using crystals to heal her broken aura while burning sage smudge sticks for the shaman. My head nodded politely but I was probably thinking about dinner... or wallpaper... or something.

My dear cherished friend... I am very sorry.

Up to that point, my experience with "natural" healing came primarily from my familiarity with New Age enthusiasts who made up the majority of the stereotypical alternative medicine crowd that I knew. And when I walked away from that environment to embrace my Catholic faith, I walked away from everything that I associated with them. Take your patchouli incense and yoga and go find your reincarnated Buddha... I want none of it!

I needed that distance at the time. I needed the clarity. But ultimately, I discovered that in multiple respects, I had thrown the proverbial baby out with the bathwater. 

Does that mean that I embrace all of the accessories of the New Age natural healing movement? No...

I'm saying that the natural world belonged to God first... And that I am seeing things rightly ordered for the first time. If something is good, true, and beautiful, it isn't freaky or nutty... It's wholesome and designed to support us in our vocation in the service of God.

Yes, I threw out the crystals, the spiritual yoga, and the Buddha. But there have been a few things that I have reclaimed as a Christ-follower, understanding with a clearer vision that their goodness is a gift. 

One of those gifts is essential oils.

THE SKEPTIC

I am a skeptic. A questioner. I also have baggage that exacerbates that tendency when it comes to the healing arts. So coming to terms with essential oils has been a mountain climb. Here is what finally convinced me...

THE SCIENCE

We know experientially that the natural world provides real solutions to illness and disease. We love the smells of nature and buy the products that feature them. We walk in beautiful places because we instinctively know that it is good for mind, body, and soul. We breathe it in, feel it on our skin, and bring it into our homes. We slather stuff all over our bodies until we smell like walking orchards and flower gardens.

Whole industries have grown out of our desire to be smelly like things that grow from the earth and to heal our bodies with the same. We crave it. We literally salivate over the smell of cookies. We boil cinnamon and cloves to feel festive and happy. 

What we also know is that the data supports our intuition...

Oregano, for example, has anti-bacterial and anti-fungal properties which can be demonstrated in a lab. We know also from clinical studies that frankincense oil has the ability to penetrate the blood/brain barrier and has a supportive impact on cellular health. Orange oil has anti-inflammatory properties and acts as a kind of anti-depressant by stimulating the senses. What we forget, however, is that these benefits aren't restricted to a scientific lab... but available to anyone with access to these potent plant compounds.

WHAT ARE ESSENTIAL OILS?

Pure essential oils are simply distilled plant compounds; potent, concentrated, and straight from God's creation. Their molecular structure allows them unique access to our bodies at a cellular level. There's nothing freaky, nutty, or unexpected about that. God's intelligence and benevolence is made manifest throughout all of creation. 

PERSONAL EXPERIENCE

For those who have followed my journey through sickness and health, you know how seriously I have had to take this discussion. Out of real necessity, I have looked beyond traditional medicine for help and found it through nutrition, movement, and environmental changes. One of those changes has been the use of essential oils. 

Remember... I'm a skeptic. I don't throw plant compounds on my body or into my environment without tons of research and when I use them, I use with care. But I can't deny it...

My body responds to essential oils. 

God is good. He loves us. He provides for us. He gave us amazing, beautiful bodies, the materials of the earth to serve those bodies, and the intelligence to use them. That applies to natural as well as traditional medicine. They both have a place. 

(Even patchouli has a place, by the way. But if you're ever tempted to buy it for me... just... don't. My sensory memory will throw an ugly fit.)

THE CATHOLIC SIDE

The natural world belongs to God. He is master of all creation and just because non-believers use a plant or move their bodies in a non-sacred way, does not make them master over those things.

Catholicism, more than any other religion, recognizes the beautiful integration of mind, body, and soul. We are charged with the care of our bodies and the earth and it is entirely consistent with who we are as Christians to recognize the gifts inherent in the created world. 

The Church herself uses oils. At the Chrism Mass on Holy Thursday, her bishops bless them for use throughout the year. They fill our sensory memories, carry symbolic significance, and are used as sacramentals. After our babies are baptized, we breathe in the balsam that was touched to them and regret that we ever have to wash it away! Frankincense has long been used in liturgical celebrations and was even given to Our Blessed Lord as an earthly gift, and was considered at the time to be a medicinal treasure.

We do not worship the created over the Creator... but neither can we wholly remove the gift from the Giver. 

INTELLIGENT USE

Essential oils are potent. I would never advise using them without proper knowledge and care. It's not complicated but does take a certain amount of awareness. Like any tool, they can be misused. I dilute my oils so that they are safe enough even for the kids in my family. I research and keep charts on hand to make sure that I'm using each unique oil in the proper way.  

I was probably more surprised than anyone when my interest led me to earn my certification as an aromatherapist. And what I found through that training is what I had already learned through my own experience: that essential oils are an affordable, safe, and effective health care option.

AT THE END OF THE DAY...

... you don't have to use essential oils to be a whole and healthy Catholic person. They are simply another tool in the wellness tool box. Your use or non-use doesn't divide us. Using them doesn't put you in a particular camp of health nuts or crunchy Catholics. Nor does not using them make you less a good steward of your body. But...

It is good to know that there is nothing inconsistent about natural health options and a strong life of faith. God's creation is magnificent. Thanks be to God!

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WHY I SHARE

Two reasons... and I'm going to be completely transparent...

1. I can't NOT share. Just like with the rest of my health journey, I feel compelled to reach out to others with my story of renewal and healing. It drives me past my shallow concern over what people will think. But I will say it a million times more if it reaches just one person:
   
   When I was 35, I sincerely thought I was going to be in a wheelchair by the time I was 40. I was that sick. I am now 41 and nowhere near that wheelchair. Doctors couldn't help me. But I changed my diet, my lifestyle, my environment... and God gave me new life with which to serve.
   
   I want that for other people. So many are suffering. Maybe someone out there will benefit from my story.
   

2. I did a lot of research before choosing a company. And truthfully, I left one popular essential oil company because I was not happy with the integrity of the leadership or the quality of the oils. It was uncomfortable. But my first priority is to my God, my vocation, my family, my health... not to a company or to my friends. Since I have to purchase from somewhere, I still had to find a source... and I did choose one that seemed more in line with my priorities than the others. I have decided that I can stand behind these essential oils enough to become a Wellness Advocate with doTERRA. That means that I get to bless my family by doing what I would already be doing: Sharing wellness.

So many of us are sick, hurting, exhausted, seeking joy amidst the physical struggle, and having a hard time staying afloat. Essential oils are not a magic cure... but they can be another means of supporting our amazing bodies. God is good.

WANT TO KNOW MORE?

If you are interested in learning more, just contact me HERE or start at the link below... "Why Essential Oils?" 

Chasing Sunshine in a Time of Darkness: Sun sensitivity and lupus

{This post may contain affiliate links. More info Here.}

If you've never heard of a "sun allergy" or photosensitivity, I can tell you a little about it. For the last year (and probably more), it has been reminding me how bizarre and all-consuming autoimmune disease can be. I've had to add it my list of silent disease symptoms... and now also to my first experience with an illness that others can actually see. 

I am not just sensitive to the sun, but to everything that emits or reflects UV rays. Fluorescent lights in stores or offices can cause a trigger even if they are windowless. Riding in a car, going on a walk even on an overcast Ohio Winter day, taking my kids to the park, going shopping, sitting near a window.

It's not really an allergic response to the sun but an issue of cell clearance... or rather, the body's inability to remove dead cells that are naturally caused by UV rays. The cells remain too long and the body begins to attack what it thinks are invaders. Healthy organs and body systems become the object of destruction. So it isn't really the sun that the body is targeting... but itself. 

I used to think that it would be better if my sickness was visible so that people would better understand what was happening to me on the inside. Now that I have the limited experience of an occasionally disfiguring disease, I see that it doesn't really help me or others cope. Not really. I don't find it less lonely or confusing... it's just different. 

WHY IS THIS HAPPENING NOW?

One truth about autoimmune diseases is that they tend to collect and multiply. For example, someone who starts off will celiac disease or hashimotos thyroiditis will, on average, collect another autoimmune disease every ten years. Once the immune system is going wonky and attacking itself, it is only a matter of time before many body systems are involved. The problem is the entire immune system and it only manifests in one area of the body at a time and damages others over time. 

That is my story. And even while I have walked back many of the most severe symptoms, I am still fighting to find ways to continually cool my overactive system and heal the source of the trouble. 

WHAT IS "NORMAL"?

I have had severe body pain ever since I can remember which is back to preschool. In middle school, my stomach and digestive tract became involved. By the time I was a young adult, I had developed symptoms of what would later become diagnosed as Eosinophilic Esophagitis (an autoimmune disease). The only treatment I was offered for that was steroids and so my symptoms continued to compound.

As a child, I didn't know that kind of pain wasn't normal. 

Fatigue.
Nausea.
Digestive issues.
Headaches.
Severe joint pain.
Muscle pain and fatigue.
Skin problems.
Sleep difficulties.
A hundred little things that add up to make you feel crazy. 
A dozen big things that make you feel afraid.

By the time I was in my mid 30's, I was battling chronic pain and illness but being told by doctors that I was in good health. I felt hopeless and depressed and there were many days when even walking across the house felt overwhelming from the pain and exhaustion. 

But it was a silent battle. And I don't think that anyone should be left alone in that silence like I was, which is why I speak it constantly in my personal life and using whatever internet platform I have. 

It's often humbling and a little awkward since I don't know the perfect way to share... but it is important enough to try. 

THE FACE OF LUPUS

It's hard to believe that the woman on the left was me just 2 years ago. So much has changed. I don't usually look like the gal on the right but... I really have not fully recovered. I've aged a lot in a short period of time. Essential oils and plain coconut, almond, or jojoba oils have been a tremendous blessing when my skin won't tolerate anything else. 

My camera washed out much of the red, raw skin in the picture on the right. But I think you get the idea. Before I figured out the connection with UV, the red patches were raw and eventually scabbed over. This is what's going on inside my body finally showing up on the outside, courtesy of a beautiful Spring morning in 2017...

When I started showing serious signs of lupus, I finally found a doctor who sat with me for an hour and listened to my full history. She took the appropriate tests and we talked.

She said...

"It seems likely that the celiac disease came first and triggered everything else. You've done a marvelous job taking care of yourself for the last few years... now let us help you. What do you want to do about the lupus? You know if you go into _______ that they will put you on prednisone right away and then start with the immune suppressants."

Yep. I know. That's why I'm here and not there. 

Celiac
Allergies
Fibromyalgia
Eosinophilic Espohagitis
Lupus

It doesn't need to be named in order to be real. But to be able to name it is to have a certain measure of control and hope. For those of you still searching, I pray that you get to name the enemy. In the meantime, I can still offer you hope.

THE PATH TO HEALING

Through dietary and lifestyle changes I have made over the past 6 years, I have brought my gluten antibody response to zero, completely reversed my esophageal symptoms (I previously could not eat anything but mushy cereal nor swallow even small pills), my joint pain/ swelling and muscle pain and weakness are occasional instead of constant and debilitating, and I am not afraid of going to gatherings where I might stumble embarrassingly over my words or be too drained afterwards to function for a week.

The healing has been life changing. But it's not over.

I have severe chemical sensitivities to pretty much everything (although pure essential oils have given me a hope in a toxic world) and planning a day trip has now become a challenge.  

How does a person adjust to a change like that? I admit I'm not handling it well. I've always had specific ideas in my mind of what painful loss looks like but never in my wildest dreams did it look like being deprived of the sunshine. 

My last troublesome flare was triggered by sitting under UV emitting fluorescent lights for two days at an aromatherapy conference. I never even went outside. 

SPRING IS COMING

As Winter slowly inches toward Spring, I'm experiencing something that I've never felt before toward the end of a Northeast Winter: dread. I simply don't know how I will traverse another beautiful sunshine season with my 8 kids, 1 husband, full life, and an inability to breathe in the amazing season outside.

I actually do know the answer: One step at a time. But I don't yet know what that looks like. Will it look like weeks of endless illness? I just don't know. 

But Spring also brings hope in the form of a new naturopathic doctor and my belief that yes, this is a mountain that I can climb. I believe that there is a reasonable chance for me to find healing. 

Most people will think I’m crazy... because people don’t reverse lupus. But to be honest with me you, I know very few people who have really tried. 

OPTIONS

The obvious medical options are prednisone and immunosuppressants. The problem with the pharmaceutical option is that it doesn't actually address the underlying cause and adds an additional burden (and potential risks) to my already struggling body. I will take them if my organs and life are at risk. But at this point, there is just as much likelihood that those medications will pose a significant threat to my organs and life expectancy. Lupus and autoimmune internet boards are full of people who are as busy battling the damage from their medications as they are their primary symptoms.

The alternative option is to continue what I have been successfully doing, and that is healing through natural means under the counsel of functional medicine physicians. This approach has already taken me from a kind of death to new life and I am committed to continuing that path.

In the meantime, Spring is coming and I'm bouncing between grumpiness and delight while internet shopping for...

• Personal UV monitors (Worth the investment?)

• UPF clothing (Can someone please develop a stylish line that doesn't look like beachwear?)

• Long sleeved swimwear and swim leggings (and I'm really confused by the purpose of UPF 50 bikinis)

• Non-toxic sunscreen (I'm trying to reconcile the price of the best mineral sunscreens for full body use or find a DIY that doesn't go on like paste. Still in trial stages!)

• Nutritious food (I'm good here... thank you local farms and Thrive Market... but I totally need a personal chef)

• Supportive supplements (Yes! Essential to my healthcare. I use doTERRA for my staples)

• Healing therapies (So much overwhelm and $$$... )

• Essential oils (Sweet affordable consolation)

I can’t buy it all but I can window shop... and try to fill the gaping hole where “control” should be. Scratch that. The gaping hole where God should be.

Okay... Deep breath.... Thank you, Lord, for lupus. It keeps bringing me back to the foot of Your glorious cross... where I’m going to keep chasing sunshine. 

UPDATE: The Roots of Autoimmune Crisis {My Updated Story of Lupus and Lyme}

The Simple Path to Healing in a Complicated World

It sometimes seems that taking care of myself (mind, body, soul) is an impossible task; one that requires the equivalent of a college education to navigate...

I sat at my desk with my head in my arms, bawling like a baby. It had been a tough week. My autoimmune disease had flared and and I was looking for a little relief and distraction on the internet from my favorite healthy lifestyle gurus. My feed was full of natural wellness awesomeness and I had been taking notes for 15 minutes with a frantic sort of energy. And then... I just fell apart. 

Bawled like a baby until my nose ran, completely overwhelmed.

 What I really needed was a good long nap, someone to give me a back rub, a personal chef, a date with my husband, and a cure for lupus. I would have settled for the nap but was instead overcome by the multiplication of digital images of infrared saunas, squatty potties, and 1001 ways to use bone broth. I'm not opposed to those things necessarily, but on that particular day...

I just needed one helpful thing. And I didn't even know which one it was.

Too tired to care and too upset to continue, I closed my laptop and cried it out for a bit; and then lay down on my bed in spite of the fact that it was only Noon and I had 52 urgent obligations weighing on me. 

It turns out that a nap was the one thing I need right then. Because sometimes the simplest path to healing in the moment is truly... the simplest thing.

When I got up again, I forced myself to take other simple actions: I took my supplements and make a quick healthy lunch. I did all the things that mothers do and then sat down here to type out a few thoughts about this exciting/horrible journey of chronic illness. 

Are you overwhelmed, too? 

I want you to know that I understand where you are at (in a general way, not a specific way) and I'm sorry if I've ever overwhelmed you in my enthusiasm and pursuit of healing. We all want to give good and healing things to people so that they can feel well again. And I want to give you every gift and blessing which I have received. 

I want to give you good nutrition.
I want to give you rest.
I want to give you a reprieve from stress, depression, and anxiety.
I want to protect you from toxic overload.
I want to to bless you with natural health care like essential oils.

But I also want to honor your pace and hold the door open for you while you take that badly needed nap. 

I don't want to be anyone's guru. 

I want to be a sister on the journey, who loves you enough to share the good stuff in life and a word of encouragement. 

Whenever I experience an overwhelming day when my body just doesn't seem to care how much effort and resources I'm pouring into it's care, I go back to basics. One thing at a time. One meal at a time. One supplement at a time. One walk, nap, prayer, song at a time.

Here are some snapshots of what simple looks like to me (borrowed from my Instagram and Facebook pages)...

My kids jokingly call my autoimmune face swelling "lupus botox." I sometimes mentally call it other things that I won't print here. But I'm finding the more I share the little daily struggles, the more others are encouraged, and the less frustrated I am by these details. I'm not as shocked and afraid by a puffy face, for example. And somehow... it gives me courage to own it... and recommit to healing...

When I am overwhelmed by all the health options out there, I fall back on nutrition, supplements, rest, and essential oils. That's pretty much all my body will tolerate. No exercise, no make-up, no pushing through big obligations. Just basics...

When I pull back from life a bit and go big with saying NO to everything that doesn't heal, I sometimes find a surprise tiny window of creative energy. My time is normally divided (by 8 kids, a husband, a homeschool, and a business) and I have lingering feelings of guilt no matter what I do... because something is always being ignored. But when I am sick... the guilt dissipates because I have no control. I know I can just enter into the ONE thing I'm doing in the moment without guilt or divided attention.

Stress is a health killer... so freaking out about being sick is counterproductive. I am learning to fully let go for that time and I'm finding that the less stressed out I am about it, the shorter the flares are. 

A health crisis is sometimes the permission that I need to slowly make a big batch of my favorite healthy mashed sweet potatoes with bacon, while sitting and chatting with the kids about everything, anything, and nothing. 

Sometimes, I just do nothing but rest while my obligations pass me by. During times of more severe illness, a hush kind of comes over my mind and soul. After the anger and the fear (which seem to come without fail), the consolation of the "hush" comes. And it is then that I realize how unimportant 90% of everything I busy myself with truly is in the light of eternity... and how God allows illness to be a gift to the soul that desires to be close to Him. 

I recently listened to a fantastic talk recently about autoimmune disease given by Dr. David Perlmutter (I think... my memory is not absolute on that but he's still a great guy). In the talk, he spoke to the slow progress of healing in a body broken by disease. He reassured the listener that healing comes over time and that it is the small steps each day which will add up.

Just like it was the small choices before which put so many of us in a state of inflammation and disease.

It's not necessarily our fault that we are suffering now, but we do have a measure of control over our healing by the ways we choose to support our bodies. And if we have any input at all into the well being of our bodies, minds, and souls, it is going to be in doing the one thing in the moment over a long period of time that makes all the difference...

Slow.
Steady.
Simple. 

At the heart of all good internet guru websites, articles, and programs is this simple way of making small, positive changes one step at a time. When you are feeling overwhelmed, just break it down all over again to the most important elements and then...

Go take a nap. 

P.S. I know you can't always take a nap (am I right, moms?)... it's just a manner of speaking about the simplest thing in the moment. But my advice is to never shun that particular window of opportunity if you can find it!

What is your favorite "simple" way to promote healing? 

Healing Autoimmune Disease Naturally: Is it Possible?

Whether or not Lupus (or any autoimmune disease) can be healed naturally has become an important question in my life. After suffering for two decades with chronic illness and actively seeking answers for the majority of that time, I finally have a diagnosis of Lupus. Diagnosis is a complicated thing; it is both a relief and a burden. In my case, it brings the undesirable news that I have an incurable disease in which my body attacks its own major organs and joints.

Bummer.

Until the 1950's, prognosis for someone with Lupus was grim, but medical advancements have greatly extended the lifespan of the average person with the condition. The "medical advancements" of which I speak are primarily medications which suppress the immune system; medications such as chemotherapy and steroids. 

I've spent many hours hanging out in the internet Lupus forums, and discussions are as often about how to deal with the negative side effects of the medications as they are how to deal with the original Lupus symptoms. That is the double edged sword of all pharmaceuticals: They are a tremendous blessing when we need an intervention that a natural resource cannot provide; but they can also become a terrible burden, giving us a new set of sufferings in exchange for the old ones. 

MEDICATIONS CAN'T HEAL THE BODY

The truth is that prescription drugs cannot heal us. Healing can only come from the body itself. The body dies when it can no longer protect and restore cells and body systems with or without assistance from pharmaceutical and natural resources. Prescription drugs cannot heal us if the body cannot, at some point, pick up the burden and continue healing and fighting on it's own.

A great example of a complicated pharmaceutical is antibiotics. We have a false notion that these little pills will kill an infection in its entirety and we can just sit back and let it happen to us and life in our body will go on as usual. The reality is that if our immune system doesn't ever engage the infection alongside the antibiotics, we will die. 

Antibiotics are a great example of the non-specific nature of prescription drugs. While they stop infection, they are not discerning and also kill off the good bacteria which live in the gut and comprise the majority (70%) of the body's immunity. It starts to get complicated. And in our desire to heal, we decrease our body's natural ability to do so. 

Our participation in that healing is often passive and even interfering. We proceed with our unhealthy habits and can't understand why the meds don't "work" the first time around... Or why our chronic cough/sinus infections/etc seem to continuously plague us.

THE NATURAL SOLUTION

The natural solution is not necessarily easy but it is a simple concept. It says: "I will focus on strengthening my body systems according to nature's design in order to protect against and battle disease." Even if we must take medications to survive, it is foolishness to ignore the basic needs of the body.

So... While I don't know that I can "cure" my Lupus, I do believe that I can manage my symptoms to some degree by honoring the fundamental biologic needs of my body. I believe it first because I have done it. I believe it also because science and research confirms that experience.

I have been managing quite well for the last 6 years (pre-diagnosis) with nutritional changes alone until recently when I experienced a lengthy flare which I could not fully control. On some level, I knew it was coming. I had been telling myself for months that I needed to stop my increasingly frequent sugar splurges... and I was conscious of carrying a stress load far too heavy for me. I also had stopped supplementing regularly just out of pure laziness. When the flare hit, I immediately cleaned up my diet, decreased my obligations, increased my sleep, expanded my essential oil use, and started my supplements again. I believe those things (along with other natural wellness resources) kept me out of the hospital. 

MOVING FORWARD

I once believed I was headed for life in a wheelchair and in ONE WEEK of dramatic dietary overhaul was able to change that trajectory. If I was able to do that only by eliminating toxic garbage from my diet, I feel confident that I can make further strides with greater application of a healthy lifestyle. 

By "healthy" lifestyle, I mean one in which I am addressing (naturally) the following factors:

1. Nutrition

2. Stress

3. Toxic Load

4. Sleep

5. Physical Movement

An honest assessment of the last 6 years tells me that I was only partially addressing #1 and #3 and yet still experienced what felt like miraculous healing. I have to ask: What more can I do for myself before I add prescription drugs to my lifestyle? There's so much room for improvement.

By the way, all of the five healthy lifestyle categories above are specifically mentioned on mainstream Lupus sites as Lupus triggers:

1. Poor Nutrition

2. Stress

3. Exposure to Toxins

4. Poor Sleep Habits

5. Sedentary Lifestyle

It is quite exciting to me to see that each of these categories has a corresponding natural solution! If I cannot eliminate my Lupus, I can surely make giant strides in managing it. 

BUT CAN AUTOIMMUNE DISEASE BE CURED?

I don't know. But I've seen plenty of evidence that people have at least been able to fully control their symptoms (meaning they have zero). I have read many accounts of people overcoming life threatening disease with only the changes that I have made. Cancers killed. Diabetes reversed. Rheumatoid Arthritis eliminated. People leaving wheelchairs behind. Very sick children becoming well again. Once I started paying attention, I realized that there is a large body of evidence suggesting that it is possible.

Am I crazy? Well, if I am, I'm certainly in good company...

• Dr. Amy Myers is one resource I have been turning to lately. She is one of many functional medicine physicians out there who are successfully treating people with autoimmune disease. She says:

"In conventional medicine, the belief is that once you have an autoimmune condition, there’s nothing you can do to reverse it, only ways to manage the symptoms. Managing the symptoms typically involves harsh medications that are aimed at suppressing your immune system. While these medications can be effective at reducing some of the symptoms of the disease, since they suppress the entire immune system, they are not without many unwanted side effects such as fatigue, weight gain, depression, increased infection rates and even cancer.

In contrast, functional medicine sees the body as a whole and works on the principle that the health of one system impacts the health and function of the others. Instead of focusing on disease symptom management, we focus on supporting and strengthening the immune system by getting to the root of why the immune system went rogue in the first place. While there is no known cure for autoimmune disease, I believe that there are five key elements that are at the root of all autoimmune conditions. In my functional medicine practice I have been able to successfully help hundreds of patients lower and reverse antibodies, get off their harsh medications, and become symptom free."

• Then there's Dr. Mark Hyman who writes about practical steps to healing autoimmune disease. He directs a functional medicine institute at a world-renowned hospital in my area.

• There's Dr Terry Wahls, a physician who healed her progressive MS through diet (The Wahls Protocol) and has been awarded $1 million dollars by the National MS Society to run a clinical trial based on her research.

• And here's a list of the "Top 50 Functional and Integrative Medicine Doctors" compiled by Dr. Josh Axe, who is doing so much amazing work in his own right.

THIS IS NOT A FAD

Healthy living is not a fad. It is a response to a culture that has been consistently deviating from a biologically appropriate course of overall health care. I am so glad to see a growing body of professionals who are committed to restoring what has been lost and embracing the best of what is new.

For those of you new to this journey, here are some of my favorite resources. There are more... so many more... but diving in to even one of these will keep you occupied and inspired for a long, long time. 

• Autoimmune Wellness is an amazing website and community that is helping countless people restore their health. I highly recommend Mickey and Angie's book The Autoimmune Wellness Handbook as well as their cookbooks. Also check out their website and links if you want to have your mind blown and hope restored.

• The Paleo Mom (aka Dr. Sarah Ballantyne) is another mind blowing resource. She is the creator of the AIP Diet (Autoimmune Protocol) and the author of "The Paleo Approach: Reverse Autoimmune Disease and Heal Your Body"

• Dr. Amy Meyers is another powerhouse of help and hope. Her book is called The Autoimmune Solution: Prevent and Revers the Full Spectrum of Inflammatory Symptoms and Disease and is a tremendous resource along with her website.

• The GAPS Diet has been a source of healing for so many. You can pick up a copy of Dr. Natasha Campbell-Mcbride's book, Gut and Psychology Syndrome: Natural Treatment for Autism, Dyspraxia, A.D.D., Dyslexia, A.D.H.D., Depression, Schizophrenia. And also check out her website for more resources.

There are so many more resources I want to share but I've already dropped enough links to send you down the wellness rabbit hole for a year!

I will continue to share my journey with you on these pages and on social media. Blogging has always been an amazing source of support and accountability in other areas of my life... and now I know will continue to be that blessing for my short and long term health. 

I am so glad to have you with me! My dream is to be able to enjoy the sunshine again without triggering sickness. What is your dream?

Homeschooling Through Chronic Illness (when mom is sick)

I have a secret about my homeschool and it's finally time to tell it. Okay, I have a few secrets...

I don't know much more about how to successfully homeschool today than I did at the beginning almost 20 years ago. I don't really go to homeschool conferences. I don't belong to a co-op. I know a lot about homeschooling and I've read all the books and purchased all the programs... but my days... they've been uncertain and long. And I've spent more than a few of them battling chronic illness.

I guess that's not the most flattering picture to paint of myself but... that's not the secret that I came here to tell anyway.  

This post is really about the secret that I discovered while slogging uphill for this dream and for my family. It's about the real gift beyond the details of these days and what I want to be able to pass on to every homeschool mom I know...

Truly successful homeschooling is never about how much material we can stuff into a kids' brain, it's about lighting a fire in their very souls. And there is no one best way to do that. It is much more about trusting the process than about planning for perfection. Success isn't for the perfect, it's for the persistent.

I clearly remember the time I kicked an American Doll horse in anger and broke my toe. That's often what my version of "persistence" looks like...

Fail, wail, move on, stop kicking toys.

That toe has never healed completely and that's frustrating but it makes for a great story that the kids love to tell. And in a strange rubber-meets-the-road-on-Calvary kind of way that usually only homeschooling moms can understand, I think I can call that a success.

The family is made to nurture body, mind, and soul. We were created to do this. We don't really look like a school. We often look like a first class mess. But that is the gift... 

That God allows us to become nothing so that the flame of His Love might rise and become a blaze in the heart of the family. 

One of the best lessons I ever learned about homeschooling was from a local mom who faced a life-threatening illness and was sick for an extended period of time. She told me that she spent many days resting in a hammock on their enclosed patio while the kids pressed on, more or less, with their homeschooling. Her kids told me how they used to pretend to work or study and they laughed and teased each other about what they really did when they were supposed to be working. She told me (with a smile) that she never doubted their decision to continue homeschooling even when she wasn't able to do a thing. Because it wasn't about her. She knew their decision was right and she trusted that God had a plan for her illness. 

Her kids are all grown now - successful, happy, smart, faithful, and all good friends - and I've never forgotten what she told me. She successfully homeschooled imperfectly from a hammock. And joy grew out of that. 

When I went through my own early years of chronic pain, illness, and fatigue, I didn't call her. I didn't really know what was wrong with me and I thought I was just a loser homeschooler. I didn't think that anyone was as lousy at this as I was and I imposed a kind of isolation on myself, determined to figure it out on my own.

But I wish I would have called her. I wish I would have let her see the tears. 

Six years ago, God allowed me to set down my cross of illness for a time. Since then, I have been on a journey of healing; not just my body, but also my battered mind and soul. And while I have never doubted for a moment that homeschooling was a worthwhile journey and blessed by God, I have never stopped doubting my own role in that beautiful dream.

Why did He make these beautiful children and then give them this wildly inadequate mother? 

It's all about the secret:

The mess is part of the gift. It is the stripping down of ego until we can see nothing but the grace of God. 

That is the secret, the gift of chronic illness. That through all the pain and struggle, we are presented with the reality that we, in ourselves, are small.... and that it is God who stands in the gap and enables us to rise. Thanks be to God.

John 12:24–25
Amen, amen, I say to you, unless a grain of wheat falls to the ground and dies, it remains just a grain of wheat; but if it dies, it produces much fruit. Whoever loves his life loses it, and whoever hates his life in this world will preserve it for eternal life.

The Morning After (A Story About Lupus)

Behind my sleepy eyelids, I can see the glow of the sun coming through my window. It is morning and I have a sinking, grieving feeling that in just a moment, I will bear the full consequence of yesterday's indulgence.

I try to blink the heaviness away from my eyes but can not; they are swollen almost shut. My face feels like a plaster mask is affixed to it and a strong cry of mourning builds up in my throat. I have been here before and the sorrow of recognition hits me like a wave. I manage to hold back the sounds of grief so I won't disturb the tiny blonde kiddo sleeping on my shoulder.

His cheeks are sun-kissed from swimming and playing the day before... a gentle rosy kiss which I know will be a stark contrast to what has happened to my own face. I haven't yet seen a mirror but I already know what I'll find there. I won't even be recognizable beneath the swelling. The sun is my enemy... and she had seduced me with her warmth and beauty... and with a touch of poison.

I have lupus and the sun is my enemy. Actually, my own body is my enemy.  When the sun shines on me, it triggers my body to attack itself... organs, skin, joints... and during a flare, there's really nothing I can do to stop it except stay in my cave and manage it. I have a rough idea of my limits, but yesterday... there was a celebration and a meal outdoors and kids to be monitored and life to be lived...

And so I let the beauty of the sun fool me again. Or rather... I knowingly went beyond what I knew my broken immune system could handle and am paying the price. 

The tears won't come until the swelling goes down and so I gently move my little prince off my arm so that he is not startled by my distorted appearance when he wakes. There are worse things than a funny looking face, but I do not want the small sorrow of even a momentary rejection this morning. 

I get out of bed and feel my ankles jiggle with the swelling. My joints are badly jarred by the slight impact on the wood floor. All 115 pounds of me... feeling like 40 years going on 100 and wishing like mad that I could at least have the sweet relief of a good cry.

But those tear ducts aren't working and so my soul cries instead as I touch my face. In confusion, I promise God (again) that I won't care two figs about what I look like as long as he lets me survive this long enough to mother my kiddos into adulthood. Just twenty years (or more), I ask. Please. 

In the emotion of the moment, I don't know if bargaining with God is okay. And I don't know if it works. I only remember the face of the crucified Christ Who loves me and I think it's okay to reach out even if I'm confused. Someone once told me that we shouldn't wait to talk to God perfectly or else we will never muster the courage to talk at all. And so this morning, He hears a lot of mixed up things from me. 

I marvel at how this swollen mask unmasks me and reminds me of how elementary I am in all things. I am nothing but a tiny girl asking her dad question after question and begging for a bit more ice cream.

"Daddy? Why did God make the moon?"
"But why did He make nasty mosquitos?"
"If God is all-powerful, why does He let people get hurt?"
"What if we pray harder? Can we stop the bad things?"

And therein lies the question that keeps people so far from the heart of Jesus Christ. We don't want the cross. And we can't see His love through our pain... we can't understand why He would let it hurt so much.

My inflamed forehead rests on the cool bathroom mirror and I think of life... how much I want to be alive and well. And I think of death... and how much I want to someday be fully alive through death. Somedays it terrifies me and some days it sounds like the relief that I pray for. That desire piggybacks on my emotion of the moment and swells into a deep longing for the Presence of Jesus Christ. 

I shuffle downstairs to grab my water, supplements, essential oils, and to figure out what kind of breakfast will help facilitate a healing day. I poke at my iPad until I find Laura Story's 'Blessings' and I press play. I listen and breathe...

"What if my greatest disappointments
Or the aching of this life
Is the revealing of a greater thirst
This world can't satisfy"

I thank the Lord over and over again for the gift of illness... and then I put on some praise music and gently dance in a way that doesn't hurt. I can't go out in the sun today because my body doesn't work right and the sun is still  somehow my enemy. But someday, I will bask in sunlight forever...

I will not hurt. 
I will not be afraid. 
I will give thanks and dance forever.

I open my email and see an invitation to come play at the park. The sun is shining and I tell the hostess that I cannot make it today. Maybe next week.

And it'll be okay. It's all going to be okay.